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What are Rare Diseases

What are Rare Diseases?

In the United States, a rare disease is considered to be one that affects fewer than 200,000 people. There are about 7,000 rare diseases, and an estimated 25 million to 30 million Americans are living with a rare disease.

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Retinal Cancer

Retinal Cancer

Retinoblastoma is a type of cancer that occurs when the retina's nerve cells have genetic mutations. Learn here the signs and symptoms of retinoblastoma.

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The Beat of Life

The Beat of Life

Congenital heart defects are diagnosed when abnormal development of the heart or corresponding blood vessels is noted. Learn here the most common signs and symptoms of congenital heart defects.

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Spinal Cord Injuries and Their Impact on Children

Spinal Cord Injuries and Their Impact on Children

Spinal cord injuries are one of the most severe injuries a child can experience. Learn here the causes, symptoms, and treatment options for spinal cord injuries.

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Cerebral Palsy and How it Impacts Children

Cerebral Palsy and How it Impacts Children

Cerebral palsy is found in approximately 1 in 345 children. Understanding cerebral palsy can help family and friends provide the best possible care and support to a child with cerebral palsy.

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Benefits of Therapy for Children with Cerebral Palsy

Benefits of Therapy for Children with Cerebral Palsy

Cerebral palsy is the most common motor disorder among children in the United States. While a cerebral palsy diagnosis comes with many life adjustments, proper treatment can improve a child’s quality of life.

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Osteogenesis Imperfecta (OI): What it Means for Children and Their Families

Osteogenesis Imperfecta (OI): What it Means for Children and Their Families

Osteogenesis Imperfecta (OI) is a genetic disorder that impacts thousands of families across the world. Learn here its causes, types, and symptoms.

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Pediatric Traumatic Brain Injuries

Pediatric Traumatic Brain Injuries: Frequency, Causes, and Side Effects

Traumatic brain injuries, also known as TBI, are a leading cause of death and disability among children. Learn here the treatment, causes, and side effects of TBI.

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The Importance of Community Integration 

The Importance of Community Integration 

Community integration is essential for children with special healthcare needs, as well as for their families. If you are interested in local community opportunities, please find a few options here.

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