Each October, we observe Spina Bifida Awareness Month, a chance to raise awareness about this complex condition, honor the strength of children and families living with spina bifida, and highlight the importance of comprehensive, coordinated care.
At the Children’s Rehabilitation Institute TeletonUSA (CRIT) in San Antonio, we see firsthand how early intervention, rehabilitation, and emotional support can transform lives.
What Is Spina Bifida?
Spina bifida is a congenital condition that occurs when the spinal column does not fully close during early pregnancy. It can affect children in several ways, including:
- Mobility: from mild weakness to paralysis, sometimes requiring braces or wheelchairs.
- Bladder and bowel function: which may require lifelong management.
- Hydrocephalus: sometimes requiring shunt placement to manage brain fluid.
- Learning and speech: some children need additional support for language or cognitive development.
Thanks to advances in pediatric care and rehabilitation, children with spina bifida today are living longer, healthier, and more independent lives.
How Spina Bifida Impacts Daily Life
Each child’s experience is unique. Families often navigate:
- Finding proper mobility support and adaptive equipment
- Frequent medical and therapy appointments
- Bladder or bowel programs to support independence
- Learning needs and emotional well-being
- Ensuring accessibility at school and in the community
Because spina bifida affects multiple areas of life, a coordinated, team-based approach to care is essential to help children reach their fullest potential.
Coordinated Spina Bifida Care at CRIT
At CRIT in San Antonio, Texas, we offer an integrated model of care that supports the whole child and family. Our coordinated care team includes:
- Physiatrists (PM&R): Oversee medical management and set rehabilitation goals.
- Physical Therapists: Build strength, flexibility, balance, and safe mobility.
- Occupational Therapists: Promote independence in daily activities, as well as skills for school and work.
- Speech-Language Pathologists: Support communication, swallowing, and cognition.
- Recreational Therapists: Foster inclusion and confidence through play and social activities.
- Psychologists and Counselors: Provide emotional support and coping strategies for patients and caregivers.
This collaborative, family-centered care helps children reach their highest potential, not only medically but also socially and emotionally.
A Community of Support in San Antonio
CRIT is more than a medical center; it’s a place of hope. Families connect with others on similar journeys, find emotional support, and gain the tools to thrive at home, at school, and in the community.
Get Involved
This Spina Bifida Awareness Month, join us in supporting children and families:
- Learn more: Explore our programs and services.
- Schedule a visit: Discover how CRIT can support your family’s needs.
- Make a difference: Donate today and help children with spina bifida and other disabilities access world-class care right here in San Antonio. www.critusa.org
Together, we can build a more inclusive world where every child can achieve their full potential.
