Your support provides rehabilitation services to children from all over the United States.

The Re-Eval By CRIT: Season 1

Disclaimer: The information presented on this podcast is not intended to be used as medical advice. Please continue to follow the recommendations of your physician and/or other healthcare providers. Please refer to your physician prior to initiating any modifications to your current healthcare regimens. 

Please contact us with any questions or concerns at podcast@critusa.org.

Episode 0: Welcome to The Re-Eval

Children’s Rehabilitation Institute TeletonUSA (CRIT) therapists bring you into the clinic, introducing you to what makes CRIT what it is.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 1: The Year of the Pandemic from Different Perspectives

Interviews include Doctor of Physical Therapy and tenured therapist Jose Ponce, about how COVID-19 changed therapy; Juan and Desiree, parents of Ryian, discussing pros and cons of Telemedicine with a toddler with Arthrogryposis Multiplex Congenita. Sammi and her mom Priscilla discussing the benefits of Telemedicine for their family while navigating Sammi’s diagnosis of Osteogenesis Imperfecta.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 2: Two Different Diagnosis with One Larger Mission

In October, we honored Rett’s Syndrome awareness by interviewing Olivia and Cruz, parents of Graciela. They share their experience with their child and what resources they have used to guide them through their journey as a family with special needs. Also, how you can get involved as a parent to make a difference in the disability community in the long run. Followed by Kimberley, Damian’s mom, discussing their journey at CRIT and navigating life with a 10-year-old with Spastic Quadriplegic Cerebral Palsy and how the community still has room to grow.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 3: Empowering Your Kids with Social Inclusion and Community Integration

Interviews include Certified Therapeutic Recreation Specialist, Natalie Klinsky discussing her role as a Recreational Therapist, and who may benefit from these services; 6-year-old Brooke and her mother, Natasha talking about how Recreational Therapy has helped them as a family.

After this, Berenice Escobedo, one of our Social Workers will explain how she provides community resources to our families to help navigate through their unique challenges that may arise as our patients transition into adulthood. Followed by Denny, one of our very own CRIT graduates, discussing the new stage in his life how he stays busy with community involvement.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 4: Occupational Therapy and Adaptive Switch Toys

In the month of April, we celebrated Occupational Therapists by introducing you to two of our very own. Rudy Cardenas and Natalie chat about what Occupational Therapy is, and the benefits of adaptive switch toys. Followed by Lucia, introducing us to her adventurous teenage daughter, also named Lucia, discussing the impact that an adaptive switch toy has made on her daily life with Spastic Quadriplegic Cerebral Palsy. While Rebecca Barry, better known as Becky, reviews the selection process of appropriate toys needed for this adaptive switch, factoring in patient’s likes, as well as how it has impacted patient progress.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 5: What is Prader Willi Syndrome?

We chat with a unique family from our clinic on this episode to bring awareness to Prader Willi Syndrome. We are joined by Gabriella and her son Pedrito, discussing what they have done to help Pedro make smart choices independently and the challenges that came with doing that. This followed by our Registered Dietician, Eva Nestor, explaining her role in educating families on how to create and follow a dietary plan and empower themselves when they are making these decisions on their own. For more information about the Prader Willi Syndrome, please visit www.pwsausa.org/resources/wseat.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 6: Let’s Talk About Speech Therapy

In May, we celebrated Better Speech and Hearing Month by interviewing one of our very own Speech-Language Pathologists, Lorena Aceves. Natalie will chat with her about what a Speech Therapist does, how her path led to Speech Therapy, and the schooling needed. She will also review what “The Big Nine” is and how she helps patients utilize different communication tools, including communication boards, and AAC devices, everything from low-technology to high-technology.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 7: What is Hippotherapy?

Today on the show, Natalie and Laura will discuss Hippotherapy, its benefits, and which diagnoses have benefitted from it. Laura will then chat with someone who has had first hand-experience with Hippotherapy, 12-year-old Hayden, on his perspective of his progress since starting back in 2017.

Reference: 1. Silkwood-Sherer DJ, Killian CB, Long TM, Martin KS. Hippotherapy – an intervention to habilitate balance deficits in children with movement disorders: a clinical trial. Phys Ther. 2012:92:707-717.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 8: The Imperfect Gift

In June, we celebrated Father’s day by interviewing super dad Rufus. He will guide us through what he and his wife went through when adopting Adira, making communication and openness a key component in their family relationship. He gives us insight on navigating life with a new daughter who also happens to have a disability. Lastly, he introduces us to his project, a podcast titled “The Imperfect Gift,” where he highlights the ups and downs of parenthood.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 9: What is Spinal Muscular Atrophy?

In August, we celebrate Spinal Muscular Atrophy Awareness Month. We interview the mother of Gabriel, Jenna, who shares their journey through Gabriel’s diagnosis of SMA. She takes us through finding a specialist to diagnose her son, clinical trials, and finding the treatment options for Gabriel and their family. She also mentions how education and advocating through community groups and other families with children with SMA help spread awareness.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 10: How Can a Genetic Counselor Help You?

As we continue to bring awareness to SMA and celebrate Spinal Muscular Atrophy Awareness Month, we interview Rebecca, one of our genetic counselors. Rebecca explains how genetic counselors help people and their families know how genes in family members carry diagnoses. She also describes how she helps families make the most informed decisions when navigating through their diagnoses. She also advocates how working ahead and knowing your gene history can help you and your family in the future.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 11:  “We’re Kids First.”  

In September, we celebrated Spinal Cord Injury Awareness Month. Natalie and Laura interviewed Zivanna and Moises, patients from CRIT, who shared their journey with this condition. They talked about their future goals, and  how they want to change how people on a wheelchair are viewed.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 12: Knowledge is Power  

In this episode, Brooke Matula, Director of Recreational Therapy at Morgan’s Wonderland, joins us. She dives into the mission of one of the most inclusive theme parks, Morgan’s Wonderland. She also discusses what Universal Design is and how we can inspire the San Antonio community to be inclusive.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 13: The Art of Giving Back  

So many organizations rely on volunteers. In this episode, we discuss why our volunteers help make CRIT so special. We interview Alma Gonzalez, Heroes for CRIT Ambassador, and we discuss how her contributions spread awareness for our patients and families. Alma then explains the importance of giving back to the community without expecting anything in return.

Listen on Spotify here.

Listen on Apple Podcasts here.

Episode 14: The Magic Behind the TeletonUSA Event

In this episode, we discuss the TeletonUSA Event and how it supports CRIT’s mission, values, and day-to-day operation. Laura and Natalie interviewed Cristina Prieto, TeletonUSA Foundation’s Corporate Sponsorship Officer, to learn about all of the preparation, hard work, and magic that goes into putting on this nationally broadcast telethon event. She discusses how the passion of everyone involved makes TeletonUSA a success year after year and what this year’s event will look like on December 11. 

Listen on Spotify here.

Listen on Apple Podcasts here.

From Your CRIT Counselor: Start Where You Are

“You can’t go back and change the beginning, but you can start where you are and change the ending.” – C.S. Lewis

Is there something in your past that you regret? It could be something you said or did or did not say or do. The reality is that we cannot go back in time and change things. However, we do have the ability to make choices today that influence our future. Every day gives us a new opportunity to start again and make different and better choices. Through these choices, we can create opportunities to increase the possibility of a better future.

If you do not know where you are going, how do you know when you will get there? Part of the process is identifying and determining where we want to go. We need a starting point and a final destination. We may not like what is currently happening, but we must assess where we are to plan to get where we want to be.

After the paper maps and before the GPS, I recall looking on the internet for the place I wanted to go, printing out the map, and highlighting the road I was to follow. With the GPS, we provide it an address, and it will direct us on the best way to go. If we make a wrong turn, it will redirect us or provide alternate routes.

Counseling is something like that. You tell me where you want to go or be. Together we assess where you are and get to your desired destination. It is a collaborative effort in which you make the final decisions.

Perseverance, Community, and Good Snacks: Raphael’s Story

Sitting in the doctor’s office at 31 weeks pregnant, Raphael’s mom, Katie, began to worry. Her son had stopped being the playful, active baby in her womb that she had grown to know. Instead of sleepless nights filled with kicks and days filled with baby flutters, Katie’s belly felt still. Instead of being able to reassure Katie, her doctors insisted that labor induction at 32 weeks was the best option. “It will be easier to diagnose and treat him outside of your belly than from the inside,” they said.

Feeling as if her last few weeks to prepare for her new baby had been ripped out from under her, Katie tried to keep her positive mindset, constantly reminding herself that in a few days, her baby boy would be in her arms. It was not long after he entered the world that Raphael was diagnosed with cerebral palsy, a motor disorder caused by an injury in the brain or the spinal region. The news was devastating; it was difficult for Katie and her partner to know the severity of Raphael’s diagnosis at such a young age, so they thought the worst.

As it turns out, Raphael’s situation is better than it could have been. His paralysis is partial instead of total. With love from his family and resources from CRIT, he has been able to navigate his diagnosis and live a happy life, even if it comes with significant obstacles. The doctors warned Katie that Raphael’s health would become a focal point in their lives; he would have many doctor’s appointments, therapies, and treatments to help him learn how to live with cerebral palsy.

After Raphael’s 3rd birthday, Katie found out about CRIT through some close friends in Houston. She loved the personalized treatment approach that CRIT offered. If she had learned one thing in the first three years of her little boy’s life, it was that every diagnosis is different, and kids deserved personalized care.

At CRIT, Physical Medicine and Rehabilitation Physicians monitor each child’s plans of care to ensure they are always in their best interest. CRIT provides its patients with physical, speech, and occupational therapies, social work, nutrition, and other services with a holistic approach. Wellness is holistic, and CRIT treats it as such. With the help of Raphael’s physician, Katie applied to CRIT, gaining acceptance shortly after.

Katie was unsure exactly what to expect, but she knew that providing her son with resources and trained professionals working together was probably the best approach. When she first walked in, clutching Raphael’s hand, Katie was relieved by the friendly faces that greeted her. She remembers the kind words the receptionists had that time and every time since, making her and Raphael feel more like family than patients.

Raphael’s rehabilitation journey has improved his life over the years, helping him navigate while strengthening his muscles and language abilities. Katie cannot imagine Raphael’s life without CRIT; raising a child always takes a village, and the staff at CRIT are a big part of Raphael’s village.

Aside from the therapies he has received, Raphael has benefited from the sense of community at CRIT. His therapists, past and present, have all left lasting impacts on his life. The community programs offered at the facility help Raphael connect with other kids his age, encouraging play and socialization, which is critical for developing brains.

Though his life has been filled with therapies, treatments, and doctor’s offices, it has also been filled with laughter, memories, and amazing people. Raphael is notorious for showing up to therapy with a snack in hand and a smile on his face. CRIT has become much more than a treatment facility; for Katie and Raphael, CRIT is a second home.

Looking back, Katie is so thankful that those doctors decided to induce labor early. As scared as she was, this enabled her to get a diagnosis for her son and start treatments as early as possible. Though some days are harder for Raphael than others, he has been committed his whole life to give each day his all, even when he was just a tiny newborn.

Katie encourages other parents with children with disabilities to seek treatment and advocate for their kids, but more importantly, keep a positive mindset. Focusing on the diagnosis takes away from allowing each child to flourish as they are. CRIT has helped empower Raphael and hundreds of other kids just like him. With their help and services, these kids are given a better chance at finding a community in this world and leading lives that make them happy, which is all any parent wants for their child.

Scoliosis: Spine Curvature Care

Scoliosis is an abnormal lateral or sideways curve of the spine. According to the American Association of Neurological Surgeons, scoliosis affects 2-3 percent of the population and typically develops early in childhood. Scoliosis, diagnosed as mild to severe, can be disabling and affect organs, such as the lungs, causing them not to function properly. 

Scoliosis can be congenital, occurring during a child’s formation as an embryo, or neuromuscular, resulting from a neurological or musculature disease. Neuromuscular scoliosis is typically associated with cerebral palsy, muscular dystrophy, or spina bifida and progresses more quickly than the milder forms of scoliosis.  

Symptoms of scoliosis vary and are visible in different forms, such as:

  • Uneven shoulders or waist 
  • Hip higher on one side 
  • A hump on one side of the back when bending over to touch the toes 
  • Body leaning to one side 

Treatment can range in various ways, from observation to bracing and surgery. These treatments also vary depending on the severity of scoliosis.

Observation

Continued observation or monitoring is required as a child grows because there is potential for the lateral curve to worsen. In mild cases of scoliosis, like when the spine has a slight curve and the child is still growing, observation is a typical treatment. 

Bracing

Back bracing is an option for children, typically between 11 and 15, who have not yet reached skeletal maturity. If worn 16 to 23 hours a day, bracing can serve as a safe treatment option and help decrease the rate of the lateral curve progress. This treatment can provide optimal results while reducing the overall spinal deformity.

Surgery

Surgery, typically performed when the spinal curve is greater than 40 degrees, is an option for severe cases of scoliosis. Because severe scoliosis happens over time, the surgery will help straighten the spine’s curve and prevent the curve from worsening. The surgery can result in a more improved quality of life for the individual and provide a pain-free life. 

Benefits of Aquatic Therapy

Aquatic therapy is performing movement or activities within a water environment by using the physical properties of water to assist with physical performance. At CRIT, we use this activity as a tool in conjunction with our land-based therapy to help facilitate progress towards rehabilitation goals for patients, when appropriate.

One key factor for greater therapy success is maintaining the pool temperature at 93 degrees Fahrenheit. The warmer temperature assists in the management of tone, muscle relaxation, and improved blood flow. Additionally, the aquatic environment allows for buoyancy, thus making the weight of the patient lighter, allowing the patient to improve standing and walking in a minimal gravitational environment. This activity then gives the patient the ability to perform land-based activities more productively. Water resistance serves as a weight, which allows for strengthening without straining joints. At CRIT, we also use hydrostatic pressure, or the forces perpendicular to the body, to decrease swelling and enhance proprioceptive or positional awareness.

Using the different properties of water can assist in many aspects of therapeutic progress, including increased strength, improved awareness, improved mobility, decreased tone, increased balance, ability to stand, walk, and more. Working in a fun and different environment can encourage more participation and improved outcomes!

Early Signs of Cerebral Palsy in Children

Understanding the early signs of Cerebral Palsy in children can help you make decisions that are best for your child’s health and wellbeing.

Cerebral Palsy is a motor disorder that affects about 1 in 135 children in the United States. Although it is one of the most common motor disorders, Cerebral Palsy can look very different from child to child. Much of the effects of Cerebral Palsy depend on the location and severity of the injury in the brain or spinal region.

For example, some children might have typical learning abilities, while others have learning difficulties; some children might have mostly typical motor skills, while others are unable to control their hands, feet, arms, and legs. Although it’s not always easy to predict the exact symptoms of Cerebral Palsy, there are certain patterns that the disorder seems to follow.

Signs and Symptoms of Cerebral Palsy in Children

Let’s examine the early signs and symptoms of Cerebral Palsy in children. Please keep in mind that most children are not diagnosed with Cerebral Palsy until they are out of infancy.

Although your child may present some of these signs of Cerebral Palsy in infants, there is a chance that they will “grow out” of the actions they are (or are not) performing. With that said, there is also a chance that your child may have a different diagnosis altogether – leukodystrophy, Pelizaeus-Merzbacher disease, and Rett syndrome are commonly misdiagnosed for Cerebral Palsy. 

Take note of the symptoms and bring it up with your pediatrician at your next appointment – this can help with early detection – but have patience with your child and their unique growing and learning process.

Common Cerebral Palsy Symptoms in Infants

Cerebral Palsy symptoms in infants are most frequently caused by an injury during labor and delivery. A brain or spinal injury might not be apparent right away, but you may notice one or more of these symptoms as your child ages:

  • Abnormal muscle tone
  • Crossed or stiffened legs when being picked up
  • Physical movement delays (sitting, crawling, rolling over, walking, etc.)
  • Difficulty controlling hand movements
  • Excessive drooling
  • Inability to lift hold their head up/control their head movements
  • Overextended back and/or neck when lifted
  • Joint and/or muscles stiffness

Most of these symptoms are also signs of Spastic Cerebral Palsy, which is seen in over 70% of Cerebral Palsy cases.

Common Cerebral Palsy Signs in Babies 6+ Months

Signs of Cerebral Palsy in babies over 6-months may either be the result of an injury that occurred during labor and delivery or during the early months of their life. Signs and symptoms include:

  • Difficulties hearing or seeing
  • Uncontrollable muscle movement
  • Stiff muscles, joints, or tendons
  • Unable to roll over
  • Unable to clap hands together
  • Keeps hands balled in a fist

Common Cerebral Palsy Signs in Toddlers

Again, toddlers may show signs of Cerebral Palsy because of an injury during birth or an injury that occurred in their early childhood. This age is typically when the signs and symptoms become most apparent, and a diagnosis can be made.

  • Inability to stand or walk
  • Abnormal posture
  • Awkward crawling
  • Delayed speech or lack of speech
  • Difficulty developing fine motor skills (eating, brushing teeth, coloring, etc.)

Find Care at the Children’s Rehabilitation Institute TeletonUSA

The Children’s Rehabilitation Institute TeletonUSA (CRIT) is a 501(c)(3) non-profit organization offering comprehensive rehabilitation services for children with neurological, muscular, and skeletal disabilities. Contact us today to learn more about how we can help your child develop physically, psychologically, socially, and spiritually. 

From Your CRIT Counselor: Just a Drop of Water

“Not every day is good, but there is something good in every day.” – Alice Morse Earl

How many times have we asked someone, “how was your day?” and their response was “my day was horrible” or “I’m having a very bad day.” We all have those days where everything seems to go wrong, for example, we can’t find our keys, we keep dropping things, we get a phone call with bad news, we’re late to work, the children don’t want to listen, we get into an argument with a loved one, and the list goes on.

If we take some time to sit, breathe, and reflect, we can find that even on those difficult days, there is something positive or a lesson to learn. I believe that if we go through something difficult or challenging, and we gain nothing from it, it is a waste of our time and emotional upset. Through challenges and difficult situations, we may learn to be resilient and develop patience, compassion, and empathy. We may also gain a new perspective on a situation or realize how strong we are emotionally and psychologically.

When you have a bad day, I encourage you to take a break and ask yourself:

  • Is it a bad day or just a bad moment?
  • What can I learn from this situation?
  • How relevant or important will this situation be a year from now?

You may find that many situations that cause us to be upset, become anxious, or stress out are not as significant when we look at the big picture. They’re just a drop of water in a big ocean of life.

From Your CRIT Counselor: Circle of Influence

April showers bring May flowers. I recall hearing that when I was younger, implying that there is a reaction for every action, as well as in our lives.

Our actions, thoughts, and feelings are connected. It’s a circle of influence. Think about the times you have been happy. You probably smile more, your posture is more upright, and you have positive thoughts and are more optimistic about events you encounter, even if they are difficult.

A similar situation occurs when we are feeling down or sad. Our thoughts tend to be more pessimistic, such as “my life is horrible,” “I’m not good at anything,” etc. Our actions may be displayed by a lack of motivation, fatigue, not wanting to get out of bed, or isolation from others.

When we feel stressed or overwhelmed but engage in an activity that we enjoy, we feel better and more relaxed. We can also change our self-talk. Instead of thinking about how horrible things are or how terrible we are, we can say, “I may be having a bad day, but things will be better tomorrow,” or “I’m having a bad moment. What can I learn from this?”

As you go through your day, do frequent check-ins with yourself. How are you feeling? What are you thinking? Is there something you can change to improve your mood or the situation? You may not control what happens during your day, but you have control over your thinking, actions, and feelings. You can determine how you view a situation you face and respond to it.

Please remember you do not have to walk this journey alone. If you would like to schedule an appointment, don’t hesitate to contact Patient Services at 210-257-6260. Sessions can be held in person or via telehealth.

The Facts and Signs of Autism Spectrum Disorder (ASD)

Autism Spectrum Disorder (ASD) is a developmental disability that can affect how people interact, communicate, behave, and learn compared to others. Autism can present in various ways and severities, but not every individual with ASD will have all behaviors. One characteristic that many Autistic individuals demonstrate is a strong focus on a specific topic or object. 

There is currently no cure for Autism. However, early treatment for individuals diagnosed with ASD is essential in order to advance functional abilities and skills for age-appropriate activities. Treatment will differ for each individual and may include Physical Therapy, Occupational Therapy, Speech Therapy, or Behavioral Therapy. 

Common signs of Autism include:

  • Little to no eye contact 
  • Strong focus on specific topics (wheels, numbers, facts) 
  • Consistent movement such as flapping hands, rocking body, spins self in circles 
  • Gets upset with minor changes 
  • Has trouble understanding other people’s feelings  
  • Delayed language skills 
  • Hyperactive, impulsive, and/or inattentive behavior 

For more information on Autism, its presentation, or its treatment, please visit the following resources: 

https://www.cdc.gov/ncbddd/autism/facts.html

https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd#part_2281

https://childmind.org/guide/autism-spectrum-disorder-quick-guide/